From author Lesley Smith via Kickstarter:
Tonight I want to talk to you about disability and what Kickstarter means for people like me.
This isn’t a sob story or emotional B.S., this is me trying to explain what a lifeline crowdfunding is to me personally.
I’m disabled, I make no bones about that. I’m legally blind, I have bipolar disorder (a boon and a bane but I wouldn’t change it), I was born so early and my brain so saturated by oxygen that I have white matter damage and my brain literally spent years rewiring itself, I have physical co-ordination issues and high functioning autism (which is genetic). I have PTSD (don’t ask). I have Generalised Anxiety Disorder. I’m introverted and my autism means I have a schedule which I hate breaking.
I’m also on enough medication to knock over a horse and my life is painfully constricted by timing and the side-effects of my medication which makes me incredibly tired and to sleep for twelve hours (if I can actually get to sleep). My life is about ensuring I take my meds at the right moment and get up early enough that I can miss the fog.
Oh and drink coffee.
I have a guide dog (and unofficial emotional support hound) named Uni who puts up with me. I use a white cane and wear dark glasses to avoid getting migraines (I’m very light sensitive). Despite that I go to Zumba twice a week, I’m active and I have quite the social life and circle of friends, many of whom are also on the spectrum of disability (and most have their own gorgeous canine companions).
. . . .
I was a journalist for a decade before my heath problems got worse. I used to work seventy hours a week, traveling all around the world. I used to be able to earn more than enough to be comfortable, to support myself and then my sight deteriorated to the point where I just couldn’t any more and my mental health took that moment to plummet.
. . . .
Disability means that I’m creative but it also means I’m on limited funds. I don’t quite live hand to mouth but it’s close. If I want something I have a choice of credit or saving for months.
It means fun projects, like publishing books, are completely out of the question. I cannot afford to get my books edited, to pay for covers and proofs, to turn a project from words on a page to a Real Book™. This is why I crowdfund.
The thing is anyone who thinks crowdfunding is easy, well they’ve never done it. Unless you’re doing a massive project with a billion follows you have to earn every pound. £4k might as well be £400,000 and books are, sadly, a niche product and it’s so much hard to fund, let along over-fund. You’re also a one-man band; I’m the PR girl, I do the finances, I liaise with the members of my indie toolbox to ensure the editing is done on time, that the covers are perfect. You get the idea.
. . . .
Normally, if I was neurotypical or not disabled, if I wanted to do something like publish a book, I’d work extra hours, I’d get a second job or start a freelance business. As a disabled author I simply don’t have that option; publishing one book would take me a year if I had to save for it myself and crowdfunding allows me to cut that time in thirds, perhaps even less.
. . . .
Disability restricts me, crowdfunding frees me.
Link to the rest at Kickstarter
Here’s a link to Lesley Smith’s books. If you like an author’s post, you can show your appreciation by checking out their books.